Understanding Ehlers-Danlos Syndrome: Comprehensive Guide to EDS in the UK
Welcome to our in-depth guide on Ehlers-Danlos Syndrome (EDS), a complex condition that extends beyond common hypermobility, impacting not only the joints but also the skin, internal organs, and other crucial body parts. This page aims to elucidate the broader implications of EDS, providing essential information for those affected by the syndrome and their caregivers.
What is Ehlers-Danlos Syndrome (EDS)?
Ehlers-Danlos Syndrome is a group of disorders that affect connective tissues, leading to symptoms like skin that does not heal normally, frequent joint dislocations, and a general increase in body flexibility.
It’s crucial for individuals exhibiting these symptoms to consult a rheumatologist, who can offer a definitive diagnosis through comprehensive evaluations.
Our discussion will cover the signs that may suggest the presence of EDS and the importance of professional oversight in managing these symptoms effectively.
For those with extreme flexibility, like contortionists or avid yoga practitioners, understanding the limits and taking precautionary measures to avoid injuries is vital.
We also share insights from individuals who live with EDS and hypermobility, describing their experiences and strategies for coping with the condition in daily life.
These personal stories highlight the need for awareness and cautious physical engagement to prevent potential damage.
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A review from a satisfied parent
My 8-year-old son was finding it very hard to concentrate and focus at school. We had also noticed this at home during daily activities.
We decided we wanted him to have a pre-assessment and a friend had suggested Headstuff. We paid for the assessment online and promptly received an email and arranged a Zoom meeting for the following week.
Kelly was great and made us all feel at ease instantly. My son engaged really well when answering the questions and it was all very informal, more like a chat with a friendly face.
Kelly is very knowledgeable and was able to link us up with a very good paediatrician.
The detailed report was written up and sent across to us within a few days.
We are now on to the next stage of diagnosis and meetings with the school. I believe the pre-assessment has helped enormously in making the process easier and move along a lot quicker.
I would definitely recommend Kelly and the team at Headstuff to anyone thinking of having their child pre-assessed for ADHD or any of the comorbidities.
Parents 8-year-old ADHD Son, Hertfordshire
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